School and Community

School will look different for every child in the CAPE program, since each child’s needs are unique. Whenever possible, we encourage children to attend school or a day program. Going to school helps children socialize, learn, and spend time outside the home. Our team is here to support you in deciding which program is the best fit for your child.

School services

Boy with a tracheostomy in a wheel chair in a store

Children who use ventilators can attend school regularly. By law, the school must provide an accessible environment for your child, known as the Least Restrictive Environment (LRE). The school is also responsible for providing transportation to and from school.

You or your child’s hospital social worker can reach out to the school to begin the process. The school will then determine if your child qualifies for an Individualized Education Plan (IEP) or a 504 Plan, which are the two main ways children receive support at school.

IEP vs. 504 Plan: What’s the difference?

FeatureIEP (Individualized Education Plan)504 Plan
PurposeProvides specialized instruction and related servicesProvides accommodation to help a child access learning
Who QualifiesChildren who meet criteria for special education under IDEA (Individuals with Disabilities Education Act)Children with a disability that impacts learning but who may not need special education
Services/SupportsSpecialized teaching, therapies (PT, OT, speech), nursing, counseling, and moreClassroom accommodation (extra time on tests, breaks, seating changes, ability to leave class when needed)
Legal BasisIDEA (federal special education law)Section 504 of the Rehabilitation Act (civil rights law)
Plan ContentIncludes learning goals, services, and progress trackingLists accommodations and supports to remove barriers
Evaluation ProcessFull evaluation by the school; eligibility meeting requiredSchool team review; often simpler process than IEP
Parental RoleParents are part of the IEP team and must approve the planParents are included but not always part of a formal “team”
EnforcementLegally binding; schools must provide all services in the IEPLegally binding; school must provide listed accommodations
ReviewReviewed at least once a year; re-evaluation every 3 yearsReviewed periodically, often once a year