{"id":311,"date":"2025-01-22T15:57:04","date_gmt":"2025-01-22T15:57:04","guid":{"rendered":"https:\/\/cape.childrenshospital.org\/?page_id=311"},"modified":"2026-02-18T19:13:32","modified_gmt":"2026-02-18T19:13:32","slug":"patient-stories","status":"publish","type":"page","link":"https:\/\/cape.childrenshospital.org\/es\/stories\/patient-stories\/","title":{"rendered":"Historias de pacientes"},"content":{"rendered":"

Meet Jonathan<\/h2>\n\n\n\n
\"teen<\/figure>
\n

When I was diagnosed with spinal muscular atrophy (SMA) as a kid, my whole world changed. My family and I had to figure out a lot of new things, like getting a wheelchair, making our home accessible, and learning how to take care of my health. It was a lot to handle, and at times, it felt really hard and sad. I often felt anxious and sad, but my parents were always there for me. They worked hard to make sure that my life was as normal and fun as possible, even though everything felt different.<\/p>\n<\/div><\/div>\n\n\n\n

Read more<\/summary>\n

School was tough for me. It wasn\u2019t just the physical challenges of using a wheelchair, but also feeling like I didn\u2019t fit in with the other kids. I loved my friends\u2014they did their best to include me in everything. But it was still hard to watch them do things I couldn\u2019t, like play sports. Instead of focusing on what I couldn\u2019t do, I decided to focus on what I could do. I loved learning! I found joy in reading books and exploring computers. That\u2019s when I discovered coding and robotics, and it inspired me to work towards a career in tech.<\/p>\n\n\n\n

My family has always been my biggest support. We found happiness in the simple things, like having family game nights, watching movies together, or just laughing at silly jokes. My sister has been especially important in my life. She always knows how to make me laugh and never treats me any differently because of my condition. She\u2019s my best friend and my biggest cheerleader.<\/p>\n\n\n\n

Living with SMA has taught me a lot. It\u2019s shown me how strong I am, and how important it is to have people who love and support you. I\u2019ve also learned how important it is to take care of my mental health. It\u2019s okay to feel sad or frustrated sometimes, but it\u2019s also important to talk to someone about it\u2014whether that\u2019s a family member, a friend, or a counselor. Taking care of your mind is just as important as taking care of your body. When I started paying more attention to how I was feeling emotionally, I felt stronger and better able to face challenges.<\/p>\n\n\n\n

I hope that by sharing my story, I can offer some hope to anyone who\u2019s going through something similar. No matter what challenges you face, you\u2019re not alone. There are so many amazing things you can do, and people out there who care about you. So, keep pushing forward, find the things that make you happy, and remember to lean on the people who love you the most.<\/p>\n<\/details>\n\n\n\n

\n\n\n\n

Meet Margaret<\/h2>\n\n\n\n
\"Little<\/figure>
\n

When I was seven, getting diagnosed with cystic fibrosis (CF) felt like I was suddenly caught in a storm. One minute, I was just a kid who loved running and playing outside, and the next, I was learning to live with hospital stays, breathing treatments, inhalers, and a lot of medication. It was like everything changed overnight. My parents had to quickly become experts in CF, figuring out new treatments, special diets, and ways to manage my health. It felt like we were in a maze without a clear way out.<\/p>\n<\/div><\/div>\n\n\n\n

Read more<\/summary>\n

My family has been amazing through all of this. My mom always knew how to make tough days a little brighter. When I couldn\u2019t go outside to play, she\u2019d come up with fun indoor games to keep me busy. My dad turned into a great cook, making yummy meals that fit my special diet. And my little sister? She was my constant source of laughter, coming up with goofy games and jokes that made me smile even on my hardest days.<\/p>\n\n\n\n

School wasn\u2019t always easy. Some classmates were understanding about my frequent absences and the coughing that came with CF, but others didn\u2019t always get it. Still, I found a group of friends in the photography club who saw me for who I really was\u2014a creative person who loved taking pictures. With their encouragement, I entered photo contests and even won a few! Balancing my health and my passion for photography wasn\u2019t always easy, but I learned how to make it work.<\/p>\n\n\n\n

Living with CF has taught me that resilience and creativity can help you find joy, even in tough times. It\u2019s okay to have bad days, but don\u2019t let them stop you from finding your passion. It\u2019s also really important to take care of your mental health. Some days, it might feel like everything is too much to handle, but reaching out to friends, family, or even a counselor can help you feel less alone. Talking about your feelings and finding healthy ways to cope is a big part of staying strong, both mentally and physically.<\/p>\n\n\n\n

I hope my story can give encouragement to anyone going through something similar. Your condition doesn\u2019t define you. There\u2019s a whole world out there full of opportunities waiting for you. So, keep pushing forward, find what makes you happy, and always lean on the people who care about you.<\/p>\n<\/details>\n\n\n\n

<\/p>","protected":false},"excerpt":{"rendered":"

Meet Jonathan When I was diagnosed with spinal muscular atrophy (SMA) as a kid, my whole world changed. My family …Read More<\/b><\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":162,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-311","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nPatient Stories - CAPE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cape.childrenshospital.org\/es\/stories\/patient-stories\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patient Stories - CAPE\" \/>\n<meta property=\"og:description\" content=\"Meet Jonathan When I was diagnosed with spinal muscular atrophy (SMA) as a kid, my whole world changed. 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