{"id":312,"date":"2025-01-22T15:58:48","date_gmt":"2025-01-22T15:58:48","guid":{"rendered":"https:\/\/cape.childrenshospital.org\/?page_id=312"},"modified":"2026-02-18T19:14:16","modified_gmt":"2026-02-18T19:14:16","slug":"caregiver-stories","status":"publish","type":"page","link":"https:\/\/cape.childrenshospital.org\/es\/stories\/caregiver-stories\/","title":{"rendered":"Historias de cuidadores"},"content":{"rendered":"

Conoce a Gabriella<\/h2>\n\n\n\n
\"Woman<\/figure>
\n

Cuando a mi hija Ale le diagnosticaron EPOC a fines de la adolescencia, sent\u00ed que no pod\u00eda ser real. Me preguntaba c\u00f3mo esto pod\u00eda estar pas\u00e1ndole a mi hija. La EPOC es poco com\u00fan en la gente joven, as\u00ed que tuvimos que encontrar medicamentos, tratamientos y hacer nuestro hogar seguro. De repente, yo no era solo su madre, sino su cuidadora a tiempo completo, manejando tanques de ox\u00edgeno y nebulizadores. Mis pensamientos se descontrolaron: \u201c\u00bfQu\u00e9 significa esto para su futuro? \u00bfC\u00f3mo progresa la enfermedad? \u00bfC\u00f3mo voy a hacer esto?\u201d<\/p>\n<\/div><\/div>\n\n\n\n

Leer m\u00e1s<\/summary>\n

Ale luchaba con ejercicios de respiraci\u00f3n, tos constante y sentirse cansado todo el tiempo. Ver a sus amigos ir a la universidad mientras \u00e9l estaba atrapado con terapias respiratorias diarias era desgarrador. No hablaba mucho de eso, pero pod\u00eda ver que lo afectaba profundamente.<\/p>\n\n\n\n

Pasaba mis d\u00edas y noches en citas m\u00e9dicas y visitas a emergencias. Luchaba entre querer rendirme y saber que necesitaba ser fuerte por Ale. Pero en esos momentos de calma, Ale y yo habl\u00e1bamos de verdad: de nuestras esperanzas, miedos y de las cosas cotidianas. Estas conversaciones nos acercaron m\u00e1s.<\/p>\n\n\n\n

El m\u00e9dico de Ale me refiri\u00f3 a un grupo de apoyo para padres de j\u00f3venes con EPOC, y ese fue un punto de inflexi\u00f3n. Era un espacio seguro donde la gente entend\u00eda por lo que estaba pasando. Esta comunidad se volvi\u00f3 crucial para mi bienestar mental, ofreciendo consejos y apoyo.\u201c<\/p>\n\n\n\n

Cuidar a alguien con EPOC es un viaje largo y dif\u00edcil. En el camino, he encontrado una fortaleza y una esperanza que no sab\u00eda que ten\u00eda. El futuro es incierto, pero atesoro los momentos de alegr\u00eda y la comunidad que hemos construido.<\/p>\n\n\n\n

Para cualquiera que est\u00e9 pasando por algo similar, no est\u00e1n solos. Es dif\u00edcil, pero tambi\u00e9n est\u00e1 lleno de momentos de belleza y conexi\u00f3n. Cu\u00eddense mientras cuidan a su ser querido y no duden en buscar apoyo. Compartir la carga marca una gran diferencia.<\/p>\n<\/details>\n\n\n\n

\n\n\n\n

Conoce a Jason<\/h2>\n\n\n\n
\"Man<\/figure>
\n

Ser hermano\/a mayor de alguien con una condici\u00f3n muscular cr\u00f3nica ha marcado mi vida profundamente. Cuando mi hermano fue diagnosticado a los cuatro a\u00f1os, yo ya era una adolescente lidiando con mis propios desaf\u00edos. El d\u00eda de su diagn\u00f3stico est\u00e1 grabado en mi memoria. Mis padres estaban devastados, lidiando con la noticia y lo que significaba para el futuro de nuestra familia. Como adolescente de catorce a\u00f1os, al principio no entend\u00ed completamente las implicaciones. Sin embargo, a medida que el tiempo pasaba y la condici\u00f3n de mi hermano progresaba, se hizo evidente que nuestras vidas estaban a punto de cambiar de maneras que no pod\u00edamos predecir.<\/p>\n<\/div><\/div>\n\n\n\n

Leer m\u00e1s<\/summary>\n

Inicialmente, observ\u00e9 c\u00f3mo mis padres asum\u00edan los roles principales de cuidado. Ellos lidiaban con citas, terapias y los desaf\u00edos diarios que implicaba manejar la condici\u00f3n de mi hermano. Sin embargo, a medida que maduraba, sent\u00ed la necesidad de hacer m\u00e1s. Vi el desgaste que esto les causaba y reconoc\u00ed que pod\u00eda ofrecer apoyo de una manera \u00fanica como su hermana mayor.<\/p>\n\n\n\n

Lentamente, comenc\u00e9 a asumir m\u00e1s responsabilidades. Desde ayudar con los ejercicios de fisioterapia hasta asegurarme de que tuviera el apoyo que necesitaba en la escuela, mi papel evolucion\u00f3. A veces era una tarea abrumadora, equilibrar mi adolescencia con las exigencias del cuidado. Hubo momentos de frustraci\u00f3n y agotamiento, pero quedaron eclipsados por el sentido de prop\u00f3sito y conexi\u00f3n que sent\u00eda con mi hermano.<\/p>\n\n\n\n

A medida que los a\u00f1os pasaron y transicion\u00e9 a la adultez, mi rol como cuidadora se hizo m\u00e1s pronunciado. Me encargu\u00e9 de coordinar sus citas m\u00e9dicas, investigar nuevos tratamientos y defender sus necesidades. Me convert\u00ed en su confidente, ofreciendo apoyo emocional en momentos dif\u00edciles y celebrando cada peque\u00f1a victoria juntos.<\/p>\n\n\n\n

Asumir el cuidado de mis padres no fue solo una responsabilidad; fue un privilegio. Profundiz\u00f3 el v\u00ednculo entre mi hermano y yo de maneras que nunca imagin\u00e9. Compartimos innumerables momentos de risas y l\u00e1grimas, enfrentando los desaf\u00edos de frente y celebrando cada hito alcanzado a pesar de las adversidades.<\/p>\n<\/details>","protected":false},"excerpt":{"rendered":"

Conoce a Gabriella Cuando a mi hija Ale le diagnosticaron EPOC en su adolescencia tard\u00eda, sent\u00ed que no pod\u00eda ser \u2026Leer m\u00e1s<\/b><\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":162,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-312","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nCaregiver Stories - CAPE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cape.childrenshospital.org\/es\/stories\/caregiver-stories\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Caregiver Stories - CAPE\" \/>\n<meta property=\"og:description\" content=\"Meet Gabriella When my daughter Ale was diagnosed with COPD in his late teens, it felt like it couldn\u2019t be ...Read More\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cape.childrenshospital.org\/es\/stories\/caregiver-stories\/\" \/>\n<meta property=\"og:site_name\" content=\"CAPE\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-18T19:14:16+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cape.childrenshospital.org\/wp-content\/uploads\/2024\/07\/nancy.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"293\" \/>\n\t<meta property=\"og:image:height\" content=\"189\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/cape.childrenshospital.org\\\/stories\\\/caregiver-stories\\\/\",\"url\":\"https:\\\/\\\/cape.childrenshospital.org\\\/stories\\\/caregiver-stories\\\/\",\"name\":\"Caregiver Stories - 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