Gabriella’s Story

Meet Gabriella

When my daughter Ale was diagnosed with COPD in his late teens, it felt like it couldn’t be real. I wondered how this could possibly be happening to my daughter. COPD is rare in young people, so we had to figure out medications, treatments, and make our home safe. Suddenly, I was not just his mom but his full-time caregiver, managing oxygen tanks and nebulizers. My thoughts spiraled– “What does this mean for his future? How does the disease progress? How am I going to do this?”

Ale struggled with breathing exercises, constant coughing, and feeling tired all the time. Watching his friends go off to college while he was stuck with daily respiratory therapies was heartbreaking. He didn’t talk about it much, but I could see it affected him deeply.

I spent my days and nights at medical appointments and ER visits. I battled with wanting to give up, while knowing that I needed to be strong for Ale. But in those quiet moments, Ale and I would really talk—about our hopes, fears, and everyday things. These conversations brought us closer.

Ale’s doctor referred me to a support group for parents of young people with COPD, and that was a turning point. It was a safe space where people understood what I was going through. This community became crucial for my mental wellness, offering advice and support. “

Caring for someone with COPD is a long, hard journey. Along the way, I’ve found strength and hope I didn’t know I had. The future is uncertain, but I treasure the moments of joy and the community we’ve built.

To anyone going through something similar, you’re not alone. It’s tough, but it’s also filled with moments of beauty and connection. Take care of yourself as you care for your loved one, and don’t hesitate to reach out for support. Sharing the load makes all the difference.